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A comprehensive overview of key concepts and practices in child life specialization. It covers various assessment models, coping strategies, play theories, and therapeutic approaches used by child life specialists to support children and families during healthcare experiences. The document also explores the importance of cultural competence, grief and mourning, and professional-patient relationships in child life practice.
Typology: Exams
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A CLS who encourages patients and families to be experts of their own family practice is building the foundation for culturally competent and spiritually supportive care
As members of the healthcare team, how do child life specialists accurately and consistently share assessment information and care plans with other healthcare team members? documentation
Components of assessment information from the family, information from the child, and information from the healthcare team
Kubler-Ross's stages of grief denial, anger, bargaining, depression, and acceptance
culture shock results when a series of disorienting encounters occur in which an individual's basic values, beliefs, and patterns of behavior are challenged by a different set of values, beliefs, and behaviors
Cross cultural competency can be demonstrated by managing culture shock
Various Models of Assessment
Stress Potential Assessment Process
Psychosocial Risk Assessment in Pediatrics (PRAP)
Child Life Assessment Intervention Plan (CLAIP)
Hawaii Early Learning Profile (HELP)
Documentation of a child life intervention in a patient healthcare record should be considered an extension of the intervention that is necessary to regard it as complete
Types of coping techniques/strategies sensory, cognitive, behavioral
sensory coping strategies rely on sound, touch, or movement to enhance the child's coping capacities
types of sensory coping strategies
cognitive coping strategies approaches that include those that help reframe or refocus thoughts from negative to positive
Types of cognitive coping strategies
behavioral coping strategies introduce behaviors that are compatible with the successful completion of the threatening event
Types of behavioral coping strategies
emotion-focused coping
directed toward regulation of one's emotional responses to potentially stressful circumstance
problem-focused coping efforts directed toward managing or changing the potentially stressful situation
temperament characteristics/qualities adaptability, irritability, activity level, emotionality, and fearfulness
characteristics of play
Parten's theory of play play described in terms of the level of social interaction involved
Parten's Stages of Play solitary play, onlooker play, parallel play, associative play, cooperative play
Piaget's theory of play based on how children utilize play materials
Piaget's stages of play functional play (practice play), constructive play, dramatic/sociodramatic play, games-with-rules
symbolic play
When does symbolic play emerge?
pretend play children demonstrate their own views of themselves and others, including the roles they and the people around them assume
therapeutic play objectives
clinical advancement programs
information provided to volunteers
Assessment variables (CLAIP)
Thompson and Standford (1981) described children's responses to healthcare as
What age are children most vulnerable to the negative effects of hospitalization? 9 months to 4 years
How can child life specialists help with pain management issues? By advocating for the use of consistent and approved pain scales
Types of professional-patient relationships
Characteristics of clinical relationship
Characteristics of therapeutic relationship
Characteristics of connected relationship
Characteristics of over-involved relationship
What theory best illustrates how a dx affects not only the pt, but also the entire family? Family systems theory
Grief the internal thoughts and feelings that are experienced when someone dies
Mourning grief gone public and involves taking the internal experience of grief and expressing outside oneself
Palliative care vs. hospice Palliative care extends the concept of care beyond the connotation of hospice to include a longer time frame and broadens the scope to apply to other illnesses that are life limiting
To best support a family through the death of their child the child life specialist should provide opportunities for memory making and legacy work
Anticipatory grief grief expressed in advance when the loss is perceived as inevitable
Sudden grief sudden and unexpected death as the result of an accident or injury
resilient the ability to return rapidly to a stable psychologic or physiologic state very quickly after disruption
emphathetic approach
Aspects of cross-cultural competence
A culturally sensitive person
Cross-cultural competence does NOT mean adopting the values, beliefs, or behaviors of another culture, shedding one's cultural identity, or knowing everything about another culture
Cross-culturally competent individuals are
Behaviors that alert the CCLS that they may not be maintaining professional boundaries
Bowlby's attachment theory
secure attachment relationship promotes exploration of the social and physical environment as the child experiences the caregiver's ability to be sensitive to and responds to his/her needs in a contingent manner
insecure attachment relationship reflect the child's experience of a pattern of inconsistent or dismissive responses to his/her bouts for attention during times of discomfort, distress, or pain
Bowlby's stages of separation
Protest
Despair
Detachment
Palliative care is most effective when a patient has a life-limiting or ultimately terminal condition
Components of the concept of death
Irreversibility the understanding that once something is dead it will not come alive again
Nonfunctionality refers to a child's understanding that all external and internal functions have stopped (ex: breathing, thinking, moving)
Universality understanding that all living things eventually die
Causality ability to understand both internal and external events may bring about a death
Afterlife belief in some sort of life after death (appears in adolescence)
Elements necessary for the capacity to consent
Consent involves making judgements for oneself and one's unique personal beliefs, values, and goals
autonomy independence; ability to make decisions for oneself
Beneficence doing good
Nonmaleficence duty to do no harm
Justice fairness; how society allocates benefits and burdens
Fowler's Stages of Spiritual Development
Undifferentiated Infants
Intuitive-Projective Toddlers & Preschoolers
Mythical-literal School-age
Synthetic-conventional pre-adolescent
Individuative-reflective
adolescent
Healthcare design philosophies
Plantree
Easy Street & Rehab 123 Easy Street
Rehab 1-2-
anthroposophy
evidence-based design
Generative design
Salutogenic design
Kenneth Rubin's types of play
Rubin's Functional play simple, repetitive muscle movements with or without objects
Rubin's Dramatic play substitution of an imaginary situation to satisfy child's personal needs and wishes
Rubin's Games with rules acceptance of prearranged rules and adjustments to these rules
most common grief reactions during the period of anticipatory mourning despair, hopelessness, worthlessness
0-3 years understanding of death
3-5 years understanding of death
normalization process by which difficult experiences or situations are made more familiar and acceptable
newborn-3 years understanding of death and associated behaviors
BEHAVIORS:
3-5 years old understanding of death and associated behaviors
BEHAVIORS:
6 to 9 years old understanding of death and associated behaviors
BEHAVIORS:
9 to 12 year olds understanding of death
BEHAVIOR:
Steps of the cyclical child life process
stress point care the process of identifying and planning for the situations with the greatest potential to overwhelm a child's or parent's coping resources
evidence-based practice involves integrating research evidence with professional expertise and patient preferences when making clinical decisions
temperament
an individual's consistent and stable pattern of behavior or reaction, one that persists across time, activity, and context
Coping process used to alter, manage, or tolerate a stressful situation
avoidant coping when children restrict their thoughts about an upcoming event, deny their worries, and detach from stressful situations
Vigilant coping seeking out detailed information and alertness to a stressful stimulus
What is most strongly correlated with children's adverse responses during hospitalization? parental anxiety
the key issues for child life assessment child's temperament & coping style, parental level of anxiety, and the number of invasive procedures
dramatic play spontaneous and guided role play that focuses on health care themes and often includes medical or nursing equipment
Non-nutritive sucking of a pacifier and sucrose solution can be used as an analgesic for painful procedures to newborns and infants up to the age of 6 months
unilateral relationships arise when one person is unwilling to adequately invest in the relationship ex: a burned-out provider who keeps interactions superficial and brief
HIPAA Health Insurance Portability and Accountability Act
PHI protected health information
beneficience to do good
Nonmaleficence to do no harm
autonomy right to self-determination
respect for persons demands that every living being be acknowledged as unique and singularly valuable, intrinsically possessed of substitutive worth and potential.
veracity duty to be truthful to others
justice implying fairness and freedom from bias and prejudice
fidelity being faithful and devoted to any obligation (promise keeping)
fiduciary someone who holds something in trust for another
confidentiality ethical obligation to respect, secure, and maintain the privacy of others
competence capacity to faithfully and skillfully carry out professional responsibilities and assignments
informed consent the sharing of information sufficient for an individual to become adequately informed to consent to a proposed tx or intervention
All medical personnel are mandatory reporters and must report
self-reflective skills awareness of biases, projection, and transference
bias prejudice for or against someone in a manner that is unfair or unreasonable
projection displacing personal undesirable feelings onto another person
transference displacing feelings or behaviors associated with a person in the past onto a person in the present
burnout associated with ongoing and predictable work demands
compassion fatigue can occur when the CLS overly identifies with the pain and suffering of others and begins to exhibit signs of stress as a result
stress management
secondary traumatic stress
narrative-style charting free form
SOAP charting subjective, objective, assessment, plan
APIE charting assessment, planning, implementation/intervention, evaluation
When communicating with the media, the CLS should provide info about the child life role and advantages to healthcare organizations and to parents and children and explain academic requirements
When communicating with the donors, the CLS should stress advantages to the community and the parents and children and the need for support for hiring
When communicating with the community, the CLS should discuss role of child life professional in helping healthcare providers, parents, and children, giving examples to which people can relate
When communicating with higher education, the CLS should discuss the growing need for educational programs for child life professionals to combat shortages and employment stats supporting that need and discuss specific program needs (internships)
When communicating with healthcare professionals, the CLS should stress the advantages that the child life professional provides to staff members in caring for pts and interacting with parents
When communicating with students, the CLS should discuss educational requirements, professional rewards, range of salaries, and job opportunities
For infants ages 6 months to 1 year, the greatest threat is separation from parents (separation anxiety)
hospitalization issues for infants (0 to 1)
separation, lack of stimulation, pain
responses to hospitalization for infants (0 to 1) failure to bond, distrust, anxiety, delayed skills development
Responses to hospitalization for toddlers (1 to 3 years) regression, uncooperativeness, protest, despair, negativism, temper tantrums, resistance
hospitalization issues for toddlers (1 to 3 years) separation, fear of bodily injury and pain, frightening fantasies, immobility or restriction, forced regression
hospitalization issues for preschoolers (3 to 6 years) separation, fear of loss of control, fear of bodily mutilation or penetration by sx, injections, castration
response to hospitalization for preschoolers (3 to 6 years) regression, anger towards primary caregiver, acting out, protest, despair and detachment, physical and verbal aggression, dependency, withdrawal
hospitalization issues for school-age (6-12) separation, fear of loss of control, fear of loss of mastery, fear of bodily mutilation, fear of bodily injury and pain (especially intrusive procedures in genital area), fear of illness itself, disability, and death
responses to hospitalization for school-age (6 to 12) regression, inability to complete some tasks, uncooperativeness, withdrawal, depression, displaced anger and hostility, frustration
hospitalization issues for adolescents dependence on adults, separation from family and peers, fear of bodily injury and pain, fear of loss of identity, body image and sexuality, concerns about peer group status after hospitalization
responses to hospitalization for adolescents uncooperativeness, withdrawal, anxiety, depression
Thomas and Chess Temperament Theory
Berk (1997) refers to children's stress as either
3 stages of transactional stress model Lazarus and Folkman (1984)
caring
family systems theory
Family stress theory (double ABCX model) McCubbin and Patterson (1983)
cultural competence academic and other skills providing an enhanced awareness of cultural concerns
cultural imposition tendency to impose personal cultural perspectives and expectations on others, regardless of their background
culture composed of values, beliefs, traditions, etc. unique to a specific group of people
ethnicity a common race and/or nationality and language shared among a specified group
race a population sharing distinctive physical characteristics that are genetically inherited
spirituality the beliefs and guiding principles that sustain an individual from day to day
FICA Faith Importance Community Address
BELIEF Belief systems Ethics
Lifestyle Involvement in a formal religious community Education Future events
immanent justice
child-directed play one-to-one play between an adult and a child in which the child directs and leads and the adult describes, imitates, repeats, and encourages the child
therapeutic play
medical play involves activities designed to familiarize children with unexpected and potentially fear-inducing experiences and/or facilitate communication, target emotional issues, and help them develop needed coping skills through play with medical items
Optimal outcome of advocacy is to have patients and family members in a collaborative relationship with health care providers
In order to be an effective advocate the CLS will need knowledge of organizational functioning as framework to apply their child development expertise, communication skills, and problem-solving abilities and teamwork
normalizing play play used for the child's enjoyment and that mirrors the type of play the child may engage in within the home environment
developmental play play intended to encourage intellectual and physical development; may include exploring the world and manipulating items, running, jumping, and playing word games
Health care play
classical play theory children's play renews energies, revitalizes, and is a means of rehearsing for adulthood
competence motivation play theory acting upon their environment through play enables children to develop competency, to enhance feelings of efficacy and control, and thereby enables them to derive personal satisfaction regardless of other rewards
arousal-seeking play theory children are innately driven toward information seeking, environmental stimulation, and arousal and play is the mechanism by which levels of stimulation can be meditated and moderated to optimum level
Assessment Gathering of information about the child, family, and various components of healthcare situation in order to determine what type of relationship and intervention is indicated
Plan Formulated based on assessment of child and family's needs Must be based on outcome goals
Intervention Made up of the direct provision of services by the CLS Begins with building rapport and a supportive relationship Main component is the execution of plans based upon a thorough assessment of the child's psychosocial needs
Evaluation Measurement criteria or employee assessment used to determine whether the goal of the intervention was achieved and to revise plans for a specific patient and for future services